I Wish I Could Have Saved My Daughter
Brad, Alfie’s Bear, Archibald, Ada and Claire In 2014, Adelaide mother Claire Foord experienced the heartbreak of losing her first child, Alfie to stillbirth. Determined to help prevent other families suffering the same tragedy, Claire is now the founder and CEO of stillbirth awareness charity, Still Aware. Her tireless efforts saw her awarded South Australia’s Local Hero in the 2016 Australian of the Year Awards. She tells her story to KIDDO… —————————————————————————————————————— It was my first pregnancy. I had covered off every single base. I had private health care, a private hospital, an obstetrician, a midwife, an acupuncturist, a hypnobirthing instructor and a yoga teacher. You would think one of these health care practitioners would have said something throughout my pregnancy about stillbirth? I had a textbook pregnancy which is a really rubbish term. It’s so false. There is no one size fits all model. It suggests every pregnant mother gets this one guide. I knew Alfie well. I knew what made her move. I knew what music she liked and that she loved listening to me reading a book as she would move around when I read. I didn’t realise I was keeping an eye on her safety at the same time. The last weeks of my pregnancy, the movements had drastically changed but slowly. Every day she got a little bit slower and less responsive to the things that would normally make her move. I naively thought because of the information I was fed through the community and clinicians that a baby slows down before it’s born. Which again, is false information. The baby actually gets stronger and the movements will intensify. The night before she was born was the time that she died. I had intense frantic amount of movement. I turned to my husband and said, ‘This baby wants out’ but then I thought of the information I’d been given about moving slower and then thought she wasn’t ready to come out yet. I didn’t realise that was going to be the last large amount of movement I felt from her. Then at 2am I felt a sudden jolt and I realised that was her taking her last movement and taking her last breath. She not longer tried to live. She had given me all these signs to keep her safe but I wasn’t given the tools to know I needed to report any of those changes. It’s stranger that you can be treated during pregnancy as if you have no say, or that you are a passenger in this journey. I asked for information with the intention of keeping my baby safe, wanting to bring her home. I didn’t realise I needed to search adverse outcomes of pregnancy. I didn’t know I needed to have the right words to ask my obstetrician so he would truly give me the right answers. I trusted these experts in the pregnancy field I had not one of them told me that they had come across stillbirth before and it was a possibility in this day and age. Like me, most pregnant women are not given information about how important it is to get to know your baby before in utero. I just got asked, is your baby moving, to which I said yes, until at 40 weeks, I said no. When I expected to go into labour and bring my baby home safely, I instead went into labour and Alfie died and I didn’t get to bring her home. Alfie was a healthy baby. The autopsy showed not only was she healthy, with no genetic illness or abnormality. Her death was like SIDS but in utero. A fatal accident, so to speak. One moment she was alive, the next she was dead. The difference is there were signs she was in distress. Had Alfie been born earlier, she would be here. In 60% of all third trimester stillbirths, there is nothing wrong with the baby and there is no reason for their death, which means they are also preventable. I wanted to create Still Aware days after Alfie was born. When she was stillborn I was told by the midwife how rare it is and that I was just very unlucky. That led to me to wonder, ‘What did I do wrong, how did I miss this?’ What could I have done to prevent it? I started doing research and actual deaths, trying to make sense of it all. I thought rare meant one in several hundred thousand. When I counted and realised it was six a day, I thought that couldn’t be right? When I dug deeper and confirmed that the right statistic was six a day I couldn’t fathom how in my pregnancy I couldn’t be made aware of the risks given it happens that often. 2,500 babies a year who die from stillbirth is not rare at all yet no one was talking about it. There are organisations doing this overseas and it has led to a reduction in deaths but Australia’s not done enough to help prevent it. I wasn’t told that it was a possibility. I was saddened to find that Alfie’s death was quite preventable because of the things that I had been feeling throughout my pregnancy and had I been given the tools to communicate them, or given information, she would likely be here today. So I couldn’t sit back and let that happen to anyone else. That’s why I started it. Amid my grief, I forced myself to write something I was thankful for because she didn’t get the chance to breathe life and how could I not live it for her? It took a long time before I was okay being around others. When I was ready, I always wanted people to talk about her. There is no right or wrong way to grieve but something is always better than nothing. So it’s always better to validate and speak up rather than be silent. Alfie is our butterfly. She is always with us, whether it’s Ada wearing a butterfly dress, or my butterfly brooch. I